Price of Rarity: Regulating Equity in Orphan Drugs
Authored by: Lamisa Aziz Art by: Andrew Mo A diagnosis of a rare disease often sounds less like a medical label and more like a sentence: one marked by uncertainty, isolation, and the unspoken fear that help may exist but remain out of reach. Orphan drugs, treatments designed for these rare conditions, offer a glimmer of hope to patients long overlooked by the pharmaceutical market. Yet that hope comes with a staggering cost, with jarring price tags that can exceed the value of a home. In...